Monday, March 31, 2008

Recent visit to PA

We were in PA two weeks back for visits with Drs. Shields and Sato. Dr. Shields was very pleased with how the eye is healing. The tumor continues to shrink, though much more slowly now. Since most of our treatment decisions now are based on preserving vision, we were encouraged to have Shields' recommend continuing with our plan at Duke (instead of kenalog, we'll try avastin).

This day of appts was the most smooth yet -- surely due in part to efficiency in the drs offices, but we're also getting used to them! Hard to believe our one year CM diagnosis anniversary is just around the corner!!

For the OM folks out there, there are a lot of clinical trials going on right now in the field of choroidal melanoma. Dr. Sato mentioned protein tyrosine kinase inhibitor therapy showing some promise. There is a study in particular called "Sunitinib, Tamoxifen, and Cisplatin in Treating Patients With High-Risk Ocular Melanoma." (Disomy 3 may be an exclusion criteria). This study is for patients who have received treatment for OM but who are mets-free.

Sunday, March 2, 2008

Follow-up at Duke

Hi,

We recently had follow-up appts at Duke and UNC. The great news is that the X-rays and bloodwork were clean! The tumor is still shrinking (slowly), and the right eye got another dose of kenalog to help with the swelling of the retina.

Since Dr. Jared Gollob left Duke back in the fall, we have learned that Duke hired a new oncologist - Dr. Amy Abernathy. She was trained at Duke and then did research in Australia before coming back to Durham. Any CM patients familiar with her?

Off to PA in a few weeks to see Drs. Shields and Sato.